Today a special little girl named Daisy is turning 6, a precious little girl who is full of life and has a very contagious smile. Daisy also suffers from a rare, incurable, life threatening disease called Juvenile Myositis. Because of her disease, she is a frequent patient at Our Lady of the Lake Children’s Hospital.
Juvenile Dermatomyositis is a form of Juvenile Myositis and is an autoimmune disease that affects the skin and muscles. The immune system attacks healthy cells and tissue causing inflammation. In JDM, the muscles and skin are targeted and the inflammation causes weakness and rash. Daisy was diagnosed in 2013 at age 3. She still has redness in her face but doesn’t have much of a skin issue since beginning medication. However, she does have muscle weakness, specifically in her neck and abdomen, and pain in her legs and feet. She also doesn’t have much stamina and tires easily.
Since Daisy’s diagnosis, her family has been committed to helping find a cure. Because JM is so rare, only 2-3 in a million children have it, they get no government funding and have no major media attention. Daisy loves to dress up. Clothes and shoes are the quickest way to her heart, naturally, her family decided a fashion show would be the perfect fundraiser. A fashion show will show what Daisy loves. It was perfect and they assembled a team of retail event managers, markets, and medical field professionals. This odd combination of team members has rocketed this event to where it is now with many sponsors of local and national businesses.
We, at Baton Rouge Moms, quickly fell in love with Daisy after seeing this video and we knew that we wanted to support Dressing for Daisy. The event will feature looks from Gap Kids, music, food, face painting, Princesses, SmileBox photography, raffles and more.
Dressing for Daisy
What: Dressing for Daisy Fashion Show Fundraiser
When: November 8th 2:00pm
Where: LSU Student Union
Why: To support Daisy and join forces to help find a cure for Juvenile Myositis.
You can purchase tickets and learn more at the following link—> curefordaisy.com/tickets
Please join us for an inspiring time of fashion and fun while supporting Daisy and helping find a cure for Juvenile Myositis.
Baton Rouge Family Fun
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